We find transparency about the question whether your donation will be spent in conformity with the statutory objectives and the policy plan of the foundation really important. This page contains the annual reports including the annual accounts, the policy plan, the articles of association and the complaints procedure.


Since the establishment of the Usher Syndrome Foundation, it has grown from a small family foundation into a professional organisation, which we all can be really proud of. Thanks to the support and the trust of contributors, sponsors and volunteers, this upward trend continues and the activities of the foundation expand. Such a considerable growth also asks for reflection. What can be done better or different? How large will we eventually become? What do we have to do to achieve this? And how can we perpetuate what has been achieved? This policy plan contains the activities of the foundation and the policy for the coming years.



Our Board members do not hold any other functions than their roles as member of the Board of the Stichting Ushersyndroom, with the exception of Ariëlla van Weerd-Ellenkamp. Apart from being treasurer of the foundation, she also works as account register and manager at PWC Nederland.


The statutory objective of the Stichting Ushersyndroom is as follows:

‘Promote the interests of people suffering from Usher Syndrome and their social environments.’


As the Stichting Ushersyndroom is a small foundation, it is not necessary to have the annual accounts audited and undersigned by an external auditor. Still, the Board has assigned an audit committee to audit the annual accounts for us. This audit is done in accordance with the legal rules before 1 July of the next year.

The audit committee consists of:
Rick Brouwer
Hilda van der Veen


The Stichting Ushersyndroom fosters its relations with partners, contributors, funds and patients.
However, if you have any complaint, please let us know. For this you can send an e-mail to: