My name is Machteld Cossee and I live in Haarlem together with my two children. I suffer from Usher Syndrome, but despite this I am a sportive person. I run, do yoga, ski, tandem (race) cycle and walk. Additionally, I love cooking, reading and I always enjoy the company of friends. I also am a lifestyle coach with Allemaal Vitaal. (www.allemaalvitaal.com)
On Monday 9 February 2015 the film ‘The Small World of Machteld Cossee’ was released. See ‘The small world of Machteld Cossee
In the autumn of 2015, I held a TedTalk in Breda titled ‘What you see is not always what it is’. After this I have held lectures about living with Usher Syndrome for various organisations/fairs/meetings.
The news that there are hopeful developments in a treatment for Usher Syndrome strengthens my commitment as Ambassador for the Stichting Ushersyndroom. I do this by supporting various projects for the foundation. I also hope to make all Ushers (and people involved) enthusiastic to make a contribution to the Usher Syndrome: for and through Ushers!