I was 16 when I was diagnosed for Usher Syndrome type 2A, just like my brother Marc.
With an enormous drive to always see possibilities I fully enjoy the large and small moments of happiness of life with my husband and our two beautiful daughters.
The remark from a physician that I would not be of value for society strengthened my urge to show that Usher Syndrome has also given me unique qualities. I completed two studies at higher professional education level and discovered that I could make my personal story work for me and used it as an extra strength in my work.
After having worked in the areas of HR, communication and events organisation, I am now making my dream of being an independent entrepreneur come true. I bundle my knowledge, vision and personal life story in tailor-made lectures and leadership sessions.

With my story I inspire professionals, entrepreneurs, managers and employees how to be resilient and flexible in times of change: www.joycederuiter.nl.
As Ambassador of the Stichting Ushersyndroom, I regularly share my story in the media, such as the AD, RTL Late Night, Overwinnaars and various podcasts (http://joycederuiter.nl/media/) and I bring the foundation to the attention of my audience every lecture again. I am always looking for possibilities to make the Stichting Ushersyndroom more widely known and to acquire donations for financing hopeful scientific research. Together we will make our dream of not becoming deaf and blind come true!