ProQR has published positive results from its Phase 1/2 Stellar trial of QR-421a, an investigational RNA therapy for the treatment of Usher syndrome and retinitis pigmentosa (RP) due to […]
CRUSH: The natural history study An interim report The CRUSH study is a study done at the Radboud UMC into the natural development of progression with Usher Syndrome type 2a […]
with a digital tour of the fish lab The Radboud PUC of Science has in cooperation with Radboudumc organised an on-line lecture about CRISPR/Cas9. This lecture was given on 10 December 2020, the […]
If you have Usher Syndrome Type 1C, your participation is critical to developing treatments. History studies are an essential part of bringing treatments to patients. As researchers get closer to […]
The documentary Silence in the night, made by Lisanne van Spronsen and Milou op ten Berg, is ready. The premiere has been postponed due to the COVID-9 measures. The trailer […]
story of ophthalmologist Dr. Ingeborg van den Born A natural development study for people diagnosed for Usher Syndrome type 1B was started already some time ago. This study is conducted in preparation […]
Despite the corona crisis, which has dominated our country for some time and as a result of which the research laboratory of Erwin van Wijk in the Radboud UMC for […]
As a result of Usher Syndrome, Sander Koomen’s world is shrinking in terms of hearing and sight loss. Sander still has big dreams and prefers to inspire others and set […]
Would you rather be deaf or blind? Joyce de Ruiter (36) from the Netherlands can’t choose, she eventually will be deaf and blind because of Usher syndrome. Her path to […]
Michael John shares his experiences and sorrow with a lot of humour in his charming writing style – open and honest – which makes him vulnerable for the world. Michael […]