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Beyond the Muted Darkness

BEYOND THE MUTED DARKNESS The photo book ‘Beyond the muted darkness’ was launched in Pakhuis de Zwijger on 31 August 2017. This book contains photographs of forty people suffering from Usher Syndrome […]

Know your gene!

Usher Syndrome is a rare hereditary disease. In the Netherlands, about 1000 people suffer from Usher Syndrome, but far from everyone has been diagnosed. Now that the scientific developments are […]