Into daily life with an artificial organ of balance
A major subsidy, making available a treatment for patients suffering from imbalance problems in a shorter time The introduction of the artificial organ of balance has come one step nearer […]
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Study of the natural Development for USH1B started
Research into the natural development of Usher Syndrome is essential in the phase of therapeutic scientific developments. Many and detailed eyesight and hearing measurements are to be recorded in order […]
International cooperation with Irish and UK patients.
Stichting Ushersyndroom have had close ties with Usher patients from Ireland and the UK for some years. Patients with Usher syndrome in Ireland and the UK have no central organisation specifically […]
The RUSH2a and the CRUSH studies
By now, both the RUSH2a and the CRUSH studies have been started in the Usher Syndrome Expertise Centre in Radboud UMC in Nijmegen, the Netherlands. What are the differences and […]
If you slowly become become deaf and blind
Slowly become both deaf and blind. It is hard to imagine. Still, this is reality for people suffering from Usher Syndrome. Usher Syndrome, actually what type of disorder is this? […]
How is Machteld Cossee doing today?
In 2014 ‘The small world of Machteld Cossee’ made by director Hetty Nietsch had its première at the Dutch Film Festival. Six months later it was broadcast on television in […]
CRUSH study and database for unraveling Usher Syndrome
Stichting Ushersyndroom will finance the start of the CRUSH study, a natural development study into Usher Syndrome. With this the basis can be laid for future trials. Patients can, with […]
Patient and physician jointly take the first step towards treatment of deafblindness
Stichting Ushersyndroom finances CRUSH study The expertise centre for Usher Syndrome in Radboudumc in Nijmegen (the Netherlands) will start a natural development study into Usher Syndrome. This is a very […]
Run in pace, following a pacer
Out of the 35,000 participants of the 7 Hills Run held on 19 November, 144 people run in the Run4Usher team. This team consists of people with a poor eyesight […]
‘I do not see myself as a person with restrictions. I am just Jeff.’
‘I do not see myself as a person with restrictions. I am just Jeff.’ He is deaf and will become blind as well. Jeff Horsten (23) from Waspik wrote a […]