By now, both the RUSH2a and the CRUSH studies have been started in the Usher Syndrome Expertise Centre in Radboud UMC in Nijmegen, the Netherlands. What are the differences and […]
About Ivonne Bressers
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Meanwhile lets just say that we are proud Ivonne Bressers contributed a whooping 170 entries.
Slowly become both deaf and blind. It is hard to imagine. Still, this is reality for people suffering from Usher Syndrome. Usher Syndrome, actually what type of disorder is this? […]
In 2014 ‘The small world of Machteld Cossee’ made by director Hetty Nietsch had its première at the Dutch Film Festival. Six months later it was broadcast on television in […]
Stichting Ushersyndroom will finance the start of the CRUSH study, a natural development study into Usher Syndrome. With this the basis can be laid for future trials. Patients can, with […]
Stichting Ushersyndroom finances CRUSH study The expertise centre for Usher Syndrome in Radboudumc in Nijmegen (the Netherlands) will start a natural development study into Usher Syndrome. This is a very […]
Out of the 35,000 participants of the 7 Hills Run held on 19 November, 144 people run in the Run4Usher team. This team consists of people with a poor eyesight […]
‘I do not see myself as a person with restrictions. I am just Jeff.’ He is deaf and will become blind as well. Jeff Horsten (23) from Waspik wrote a […]
Liesbeth Beekhuis (35) suffers from Usher Syndrome and will slowly but surely become both deaf and blind. In ‘Sheer Happiness’ she is surprised with precious memories that she can save […]
He was born deaf. And he will become blind as well. Jeff Horsten sings a self-written song about his restrictions on YouTube. The 23 years old man from Waspik, the […]
Stichting Ushersyndroom makes available an amount of €35,000 to Radboud UMC for the restart of the ‘minigenes’ study in connection with Usher Syndrome. This involves the study which gives hope to […]