Liesbeth Beekhuis (35) suffers from Usher Syndrome and will slowly but surely become both deaf and blind. In ‘Sheer Happiness’ she is surprised with precious memories that she can save […]
He was born deaf. And he will become blind as well. Jeff Horsten sings a self-written song about his restrictions on YouTube. The 23 years old man from Waspik, the […]
Stichting Ushersyndroom makes available an amount of €35,000 to Radboud UMC for the restart of the ‘minigenes’ study in connection with Usher Syndrome. This involves the study which gives hope to […]
Research into treatment for Usher Syndrome If you suffer from the Usher Syndrome, your eyesight increasingly deteriorates. This cannot be prevented yet, but perhaps this will be possible in the […]
Machteld Cossee (38) suffers from a hereditary disorder which increasingly deteriorates her hearing and eyesight. “If only I can take care of my children without too much trouble.” MACHTELD SUFFERS […]
Hetty Nietsch followed Machteld Cossee, who is slowly becoming both deaf and blind because of a disease, for six years. If I filmed her just in a normal way, people […]