CRUSH study and database for unraveling Usher Syndrome
Stichting Ushersyndroom will finance the start of the CRUSH study, a natural development study into Usher Syndrome. With this the basis can be laid for future trials. Patients can, with […]
Entries by Ivonne Bressers
Patient and physician jointly take the first step towards treatment of deafblindness
Stichting Ushersyndroom finances CRUSH study The expertise centre for Usher Syndrome in Radboudumc in Nijmegen (the Netherlands) will start a natural development study into Usher Syndrome. This is a very […]
Before everything will be dark tomorrow
The sisters Lotte (18) and Roos (16) both suffer from Usher Syndrome. This means that they will soon become both deaf and blind. They do not know how fast this […]
Run in pace, following a pacer
Out of the 35,000 participants of the 7 Hills Run held on 19 November, 144 people run in the Run4Usher team. This team consists of people with a poor eyesight […]
‘I do not see myself as a person with restrictions. I am just Jeff.’
‘I do not see myself as a person with restrictions. I am just Jeff.’ He is deaf and will become blind as well. Jeff Horsten (23) from Waspik wrote a […]
‘Sheer happiness’: Liesbeth is becoming blind and deaf and wants to keep seeing her children
Liesbeth Beekhuis (35) suffers from Usher Syndrome and will slowly but surely become both deaf and blind. In ‘Sheer Happiness’ she is surprised with precious memories that she can save […]
Deaf and almost blind Jeff moves and inspires with song
He was born deaf. And he will become blind as well. Jeff Horsten sings a self-written song about his restrictions on YouTube. The 23 years old man from Waspik, the […]
Hear, see and feel
In ‘Hear, see and feel’ we see the Op ‘t Land family from Zevenhoven, the Netherlands. Daughter Jet (13) and son Simon (18) were recently told that they suffer from […]
Stichting Ushersyndroom finances restart of ‘minigenes’
Stichting Ushersyndroom makes available an amount of €35,000 to Radboud UMC for the restart of the ‘minigenes’ study in connection with Usher Syndrome. This involves the study which gives hope to […]
Parent prodigies
Is it possible to give a child a carefree childhood when one of the parents suffers from Usher Syndrome? In the documentary ‘Wonderouders’ Ivonne Bressers talks with her two daughters […]