Stichting Ushersyndroom will finance the start of the CRUSH study, a natural development study into Usher Syndrome. With this the basis can be laid for future trials. Patients can, with […]
About Ivonne Bressers
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Entries by Ivonne Bressers
Stichting Ushersyndroom finances CRUSH study The expertise centre for Usher Syndrome in Radboudumc in Nijmegen (the Netherlands) will start a natural development study into Usher Syndrome. This is a very […]
The sisters Lotte (18) and Roos (16) both suffer from Usher Syndrome. This means that they will soon become both deaf and blind. They do not know how fast this […]
Out of the 35,000 participants of the 7 Hills Run held on 19 November, 144 people run in the Run4Usher team. This team consists of people with a poor eyesight […]
‘I do not see myself as a person with restrictions. I am just Jeff.’ He is deaf and will become blind as well. Jeff Horsten (23) from Waspik wrote a […]
Liesbeth Beekhuis (35) suffers from Usher Syndrome and will slowly but surely become both deaf and blind. In ‘Sheer Happiness’ she is surprised with precious memories that she can save […]
He was born deaf. And he will become blind as well. Jeff Horsten sings a self-written song about his restrictions on YouTube. The 23 years old man from Waspik, the […]
In ‘Hear, see and feel’ we see the Op ‘t Land family from Zevenhoven, the Netherlands. Daughter Jet (13) and son Simon (18) were recently told that they suffer from […]
Stichting Ushersyndroom makes available an amount of €35,000 to Radboud UMC for the restart of the ‘minigenes’ study in connection with Usher Syndrome. This involves the study which gives hope to […]
Is it possible to give a child a carefree childhood when one of the parents suffers from Usher Syndrome? In the documentary ‘Wonderouders’ Ivonne Bressers talks with her two daughters […]