TAKE ACTION
Just like our ambassador Machteld Cossee, come into action for Stichting Ushersyndroom! As a lifestyle coach at AllemaalVitaal [all vital] and a fervent runner, Machteld is like no other aware of the importance of good health.
COLLECTED SO FAR
Stichting Ushersyndroom spend the raised funds on scientific research into a treatment for Usher Syndrome and for a better quality of life. Do you want to know which projects we already financed?
ABOUT STICHTING USHERSYNDROOM
Stichting Ushersyndroom [Usher Syndrome Foundation] is a network organization. We are all people living with Usher Syndrome, supported by the people around us. We fight for a treatment and for a better quality of our lives.
OUR DREAM
IF YOU BECOME BOTH DEAF AND BLIND…..
WHAT IS LEFT TO DO?
As ambassador of Stichting Ushersyndroom Joyce de Ruiter, who suffers from Usher Syndrome herself, regularly brings the foundation to the attention of the media and gives lectures as a professional speaker and inspirer. With her story she inspires organisations to be resilient and flexible in times of change. In this way she holds up a mirror to the faces of hundreds of professionals, managers, entrepreneurs: fall or go on?
ENTREPRENEURSHIP WITH IMPACT
As a company you can mean a lot to us with little effort. Think of the things given below.
- Partnership
- Sponsoring
- Participate in our events
- Christmas campaign
USHIE, OUR MASCOT
Ushie, our mascot with black sunglasses and headset, is hot! USHIE is the symbol of all people who cannot hear and see well because of Usher Syndrome. USHIE is gender-neutral, cool and very lively!
LATEST NEWS
THIS WEBSITE
By clicking the ‘eye’ in the upper left corner of the screen, you can set your personal preferences.
Who cleans up ‘the mess’ from the cones?
New research on the cause of blindness due to Usher syndrome A research team led by Dr. Ronald Roepman (www.roepmanlab.com) is conducting research at Radboudumc, Netherlands, to investigate the underlying […]