WHAT IS USHER SYNDROME?

What would you choose, being deaf or blind?
I do not have a choice,
Usher syndrome will make me both deaf and blind!

Still, this is reality for people suffering from Usher Syndrome. The diagnosis has a great impact on the future perspective. No treatment has been found yet.

TAKE ACTION

Just like our ambassador Machteld Cossee, come into action for Stichting Ushersyndroom! As a lifestyle coach at AllemaalVitaal [all vital] and a fervent runner, Machteld is like no other aware of the importance of good health.


COLLECTED SO FAR

1.509.577, -

Stichting Ushersyndroom spend the raised funds on scientific research into a treatment for Usher Syndrome and for a better quality of life. Do you want to know which projects we already financed?


ABOUT STICHTING USHERSYNDROOM

Stichting Ushersyndroom [Usher Syndrome Foundation] is a network organization. We are all people living with Usher Syndrome, supported by the people around us. We fight for a treatment and for a better quality of our lives.


OUR DREAM

IF YOU BECOME BOTH DEAF AND BLIND…..

WHAT IS LEFT TO DO?

As ambassador of Stichting Ushersyndroom Joyce de Ruiter, who suffers from Usher Syndrome herself, regularly brings the foundation to the attention of the media and gives lectures as a professional speaker and inspirer. With her story she inspires organisations to be resilient and flexible in times of change. In this way she holds up a mirror to the faces of hundreds of professionals, managers, entrepreneurs: fall or go on?

ENTREPRENEURSHIP WITH IMPACT

As a company you can mean a lot to us with little effort. Think of the things given below.

  • Partnership
  • Sponsoring
  • Participate in our events
  • Christmas campaign

USHIE, OUR MASCOT

Donate for more CRUSH research

Ushie, our mascot with black sunglasses and headset, is hot! USHIE is the symbol of all people who cannot hear and see well because of Usher Syndrome. USHIE is gender-neutral, cool and very lively!

LATEST NEWS

Two groundbreaking projects awarded

‘Moon Rocket Grant’ awarded to two groundbreaking projects At this moment, there is no treatment yet for Usher Syndrome, a disorder that globally 400.000 people suffer from. In order to […]

THIS WEBSITE

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DO YOU HAVE A DIAGNOSIS OF USHERS SYNDROME?

Contact Usher4Usher: fellow sufferers contact Go to the Knowledge Portal to read more about Usher Syndrome Order the patient brochure in the webshop