Ushersyndroom Foundation is a small foundation which wants to achieve an as high as possible result at low costs. By sending requests to equity funds and organising events we collect money for financing research.
The Ushersyndroom Foundation has been indicated as an Algemeen Nut Beogende Instelling (ANBI = Public Benefit Organisation). This means that Ushersyndroom Foundation is a non-profit organisation which is for 100% committed to public interest. The Ushersyndroom Foundation does not receive any government support and is entirely dependent on donations and gifts from funds, private persons and companies.
We want to be a network organisation and work together with other organisations. Usher Syndrome is a unique impairment of two senses, being hearing and seeing. This makes cooperation with both the ‘ear’ and the ‘eye’ organisations self-evident.
In 2015 the foundation achieved a substantial growth by collecting money for research and familiarity. We successfully brought Usher Syndrome to the attention of the Dutch people. And we will keep on doing so!
In 2016 we want to continue to grow and to become more professional. We will also call for even more attention to Usher Syndrome. Here we really need your support, help and commitment. No matter whether you want to do this as partner, donor, from a fund or as a volunteer, we will receive all help with open arms. Here read how you can support the Ushersyndroom Foundation or contact us via mail firstname.lastname@example.org
Spending of resources
The Ushersyndroom Foundation works as efficiently as possible on reaching its objectives. Expenditures are closely monitored and annually audited by a recognised accountant. Besides, the foundation is trying to acquire as many as possible sponsors in order to keep the costs as low as possible.
The website gives a current report of all our activities, such as the studies that we support and the fund-raising events that we organise. Our annual report is found on our website as well for inspection by all people interested. An accountant assesses our annual report.
The Ushersyndroom Foundation fosters its relations with partners, donors, funds and patients.
However, if you have a complaint please tell us.
The Ushersyndroom Foundation has had a new board since March 2016 and its members will work hard on a policy plan and annual reports in the coming months. These will be published as soon as possible.