FACEBOOK GROUPS

    There are several Facebook groups in which people suffering from Usher Syndrome and/or parents are active. In these groups they exchange experiences and ask each other questions. You have to be on Facebook to be able to become a member of one of these groups.

    USHERS IN CONTACT

    Ushers in Contact

    • for people suffering from Usher, (types 1, 2 and 3), partners, parents and other people involved
    • owner: Merianne van Oord
    • private group, apply through personal message

    Y-USHERS

    Y-Ushers

    • for young people suffering from Usher between 14 and 24 years old
    • owner: Caro Anna
    • private group, apply through personal message, telling us who you are and how old you are

    PARENTS OF A CHILD SUFFERING FROM USHER SYNDROME

    Parents of a child suffering from Usher Syndrome
    – Private and secret group (not to be found)
    – Owners are Esther van Popta and Elvira Belt

    – Apply through a personal message

    GROEPEN VOOR MENSEN MET DOOFBLINDHEID

    Er zijn ook een aantal (besloten) facebook-groepen die specifiek bedoeld zijn voor mensen met doofblindheid om elkaar digitaal te ontmoeten, informatie uit te wisselen en activiteiten organiseren.

    • Doofblinden Wereld
    • Doofblinden Meetings
    • Doofblinden Moeders
    • Doofblinden Agenda
    • Nederlandse Doofblinden Connexion (DBCX)
    • OOR & OOG Oogvereniging
    • Doof, slechthorend, doofblind & gebarentaal