Every year on the third Saturday of September, we celebrate International Usher Awareness Day. This day coincides with the autumn equinox. On this day the sun is directly above the equator and the day and the night have the same length. Following the autumn equinox, there will be less light every day; days get shorter and nights get longer.
The autumn equinox is the ultimate metaphor for the Usher Syndrome, because this experience of seeing increasingly less light is an irreversible process for people suffering from Usher Syndrome. The light-sensitive eye cells that have died in the eyes and the cilia in the ears will never come back.
Being diagnosed for Usher Syndrome is a frightening experience.
Therefore we want to make Usher Syndrome known around the world and so create a better understanding of the impact of getting both deaf and blind. Everyone in the world must know that people suffering from Usher Syndrome are remarkably driven and motivated to keep taking part in society. #USHDAY