The Ministry of Health has declared Radboudumc in Nijmegen, the Netherlands, the National Usher Syndrome Expert Centre. A special Usher desk has been set up for people suffering from Usher Syndrome.

    Everyone who has been diagnosed for Usher Syndrome or suspects that Usher Syndrome is involved, can make an appointment with this Expert Centre. For this a referral is required from an ENT specialist, an ophthalmologist or the general practitioner.

    This referral can be addressed to Dr. R.J.E. Pennings mentioning that this is about Usher Syndrome.
    If additional eye tests are required, then also mention Dr. C. Hoyng with the request to plan a simultaneous appointment.

    An appointment can be requested through the specifically created e-mail address of the Expert Centre.


    Philips van Leydenlaan 15
    6525 EX Nijmegen, the Netherlands

    ENT department route 383
    Eye department route 400

    With the route planner you can calculate how long it will take to reach Radboud UMC, both by car and by public transport. Here you can also find a convenient itinerary for inside the hospital.

    Ronald Pennings, MD, PhD, ENT consultant and Usher syndrome specialist


    In the CRUSH database of the National Usher Syndrome Expert Centre in the Radboudumc (Nijmegen, the Netherlands) all patient data of patients diagnosed for Usher Syndrome are collected. This database is essential for research and future trials.


    Read more about the Usher Desk on the website of the national Usher Syndrome Expert Centre of Radboudumc in Nijmegen, the Netherlands.