USHER SYNDROME EXPERT CENTRE
The Ministry of Health has declared Radboudumc in Nijmegen, the Netherlands, the National Usher Syndrome Expert Centre. A special Usher desk has been set up for people suffering from Usher Syndrome.
Everyone who has been diagnosed for Usher Syndrome or suspects that Usher Syndrome is involved, can make an appointment with this Expert Centre. For this a referral is required from an ENT specialist, an ophthalmologist or the general practitioner.
This referral can be addressed to Dr. R.J.E. Pennings mentioning that this is about Usher Syndrome.
If additional eye tests are required, then also mention Dr. S. Yzer with the request to plan a simultaneous appointment.
An appointment can be requested through the specifically created e-mail address of the Expert Centre.
Philips van Leydenlaan 15
6525 EX Nijmegen, the Netherlands
ENT department route 383
Eye department route 400
With the route planner you can calculate how long it will take to reach Radboud UMC, both by car and by public transport. Here you can also find a convenient itinerary for inside the hospital.
In October 2021, Radboudumc was again recognized by the Ministry of Health, Welfare and Sport as an expertise center for Usher Syndrome. This makes it clear to both patients and (referring) healthcare professionals where the expertise for Usher Syndrome can be found.
ENT doctor Dr. Ronald Pennings wants to work together with ophthalmologist Dr. Suzanne Yzer. Together they have great ambitions and they want to organize and improve the care for patients with Usher syndrome in a different way.
In the CRUSH database of the National Usher Syndrome Expert Centre in the Radboudumc (Nijmegen, the Netherlands) all patient data of patients diagnosed for Usher Syndrome are collected. This database is essential for research and future trials.