THE PSYCHO-SOCIAL CONSEQUENCY OF USHER SYNDROME

    Prof. Dr. Möller conducts psycho-social research into people suffering from Usher Syndrome. In his homeland Sweden, he has met over 700 families living with Usher Syndrome in the past years. During a symposium held in the Netherlands in 2017, he held a lecture about the psycho-social consequences of Usher Syndrome.

    THE CONSEQUENCES OF USHER SYNDROME FOR THE QUALITY OF LIFE

    Marina Arcous e.a. did a scoping review on the consequences of progressive deterioration of the senses for the quality of the lives of people suffering from Usher Syndrome.

    LEVEND VERLIES

    “Als je moet leven met een beperking, staat daar geen punt achter. Je moet elke dag weer opnieuw zien dat je het leven kan organiseren met die grenzen.” Manu Keirse

    LIFE STRATEGIES FOR PEOPLE SUFFERING FROM USH 2A

    Claes Möller & Moa Wahlqvist and their team did a study into the strategies that people suffering from Usher Syndrome type 2A apply in order to be able to cope with Usher and its consequences.

    There are no studies into the life strategies of people suffering from Usher Syndrome. In literature people suffering from deafblindness are often described as being vulnerable. They would have a low quality of life and be in less good health because of psycho-social consequences of Usher Syndrome.