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Trailer Silence in the night

The documentary Silence in the night, made by Lisanne van Spronsen and Milou op ten Berg, is ready. The premiere has been postponed due to the COVID-9 measures.

The trailer can already be viewed, with subtitles.

For Jackson

Click on the photo to watch the film

 

A documentary made by Luca van Turnhout and Linse Chantrain

How does anyone deal with such a diagnosis? We follow Carolien, Willem and Jackson in their daily lives. Although they are daily confronted with Usher Syndrome, they live from one day to the next and try not to think of the future too much. This is not always very easy, though.

A documentary as a bachelor assignment for the applied audiovisual communication (BATAC) training of the THOMAS MORE HOGESCHOOL in Mechelen, the Netherlands/2020.

An article in connection with this mini-documentary: I have a haste for life, because of him’.

This film is spoken in Dutch and does have English subtitling.

A sense of black

The documentary ‘A sense of black’ takes its viewers along in the world of the blind artist George Kabel (1955) from Eindhoven, the Netherlands.
George is sculptor and one of the 800 Dutch people suffering from Usher Syndrome. For George this means that apart from being blind, he will become deaf as well.

The story of George Kabel is the story of overcoming a major setback and giving life a new meaning.

The film had its première in December 2018 during the Eindhoven Film Festival in the Van Abbe museum.

Script, scenario and production: Gerben Zevenbergen
With English subtitling.

 

Before everything will be dark tomorrow

The sisters Lotte (18) and Roos (16) both suffer from Usher Syndrome. This means that they will soon become both deaf and blind. They do not know how fast this will happen, but their eyesight and hearing already are well below the levels of other people of their age.

Still, the sisters do not prevent themselves from getting the most out of life. Roos is working hard for her final exam and Lotte is fully engaged in her course to become a photographer. They also want to do a few special things, such as seeing the Northern Light, before it is too late.

Production: Kim Smeekes

Unfortunately, this film is only available in Dutch.

Vader, Simon, Jet, moeder en zus Op 't Land naast elkaar op een bospad

Hear, see and feel

In ‘Hear, see and feel’ we see the Op ‘t Land family from Zevenhoven, the Netherlands. Daughter Jet (13) and son Simon (18) were recently told that they suffer from Usher Syndrome.

All family members live in the knowledge that both children will eventually become both deaf and blind. However, nobody knows when and how fast this will go.

This documentary was made by students of the Media, Information and Communication training at the Amsterdam University of Applied Sciences.

Automatically generated English subtitling available.

Parent prodigies

Is it possible to give a child a carefree childhood when one of the parents suffers from Usher Syndrome?  In the documentary ‘Wonderouders’ Ivonne Bressers talks with her two daughters about the impact that Usher Syndrome has on their lives.

Apart from the moving life stories, ‘Wonderouders’ particularly is about fighting spirit, resilience and hope and every story shows an unconditional connection between parent and child.

9 May 2016, MAX broadcasting, 2Doc

Unfortunately only available in Dutch.

The small world of Machteld Cossee

Lisa Blom and documentary maker Hetty Nietsch followed the life of Machteld Cossee for six years. They stayed at the home of Machteld and her family and so recorded intimate moments in their lives.
How do you live your life knowing that one day your world will be quiet and dark? The central figure in the documentary ‘The small world of Machteld Cossee’ knows that she cannot escape her fate. Still, she tries to live a normal life for as long as possible. This results in touching moments as well as frustrations and rows and moments of fear for the future.

Summary
On her seventeenth birthday, Machteld is told that she suffers from Usher Syndrome. At that time she already is hard of hearing, but she will become blind as well. This message is a great blow to the family. Still it is rarely mentioned after this. Her father is a general practitioner and finds it hard to accept that there is nothing he can do for his daughter.
Machteld herself tries to build up an as normal as possible family life with her boyfriend and not to give in to her fear. Machteld: ‘When I think of it, it literally seizes me by the throat. So then I think, what will we have for dinner this evening?’
In the film we see what Machteld sees and hears, how she scans her surroundings, how she slowly becomes an outsider in her own life. How she fights with the desire to give a meaning to her own life. Machteld’s world is small already. There always is that fear: when will my hearing and my last bit of eyesight definitely disappear, making my world as small as it will get?

The documentary was shown earlier at the Dutch Film Festival in Utrecht on Wednesday 1 October 2014.
This documentary had its première on television at NPO2 broadcast by the VARA on 9 February 2015.

*The documentary has Dutch and English subtitling

 

Yellow the world

Dario Sorgato, founder of NoisyVision, brought the #YellowTheWorld campaign to its climax.

In the documentary Sorgato explains his motivation, preparations and finishing of his adventure. His sensory impairments have influence on his daily life, but they do not prevent him from living his life to the full.

With English subtitling.

Invisible

At first sight people cannot see that Hedda de Roo (24) has an impairment. However, nothing is further from the truth. Her impairment becomes visible as soon as dusk falls.

Unfortunately, this film is only available in Dutch.

Tomorrow everything can be dark

Franka (27) suffers from Usher Syndrome. She is deaf and has limited eyesight. She went to a boarding school when she was 14 years old. She only saw her family in the weekends and during the holidays. Thus the contact with her parents, brother and sister slowly decreased. Now Franka is living alone and she does packaging work at a sheltered workshop.

Morgen kan het donker zijn’ (Tomorrow everything can be dark) shows her daily life. Her impairments make her life really complicated. She does not readily reconcile herself to the situation, even though her stubbornness does not make things easier. She tells her story with the help of a signer. Franka will not be trifled with and this comes to a climax during a talk with her parents at home.

Production: Cinta Forger, Walther Grotenhuis. This documentary had its première at the Dutch Film Festival and was broadcast on television in 2011 and 2014.

Unfortunately, this film is only available in Dutch.